Family-Reported Posthospitalization Outcomes for Children With Complex Chronic Disease.
Many children with complex chronic disease had not returned to health baseline by 7 days
Family-Reported Posthospitalization Outcomes for Children With Complex Chronic Disease.
Children with complex chronic disease (chronic disease) are at high risk for poor hospital-to-home transition and unplanned urgent health care use.
We sought to identify patient- and family-reported outcomes (PROs) of transition effectiveness that matter most to families of children with chronic disease and to assess the feasibility, acceptability, and variation in each family-identified PRO among recently discharged families.
We recruited family members of children with chronic disease to participate in design sessions to review existing and develop new PRO measures.
most kids hadn't returned to their usual health by one week post-discharge
Families endorsed existing transition effectiveness measures and co-created a Return to Baseline measure assessing progress toward prehospital baseline.
Return to baseline at 7 days with regards to child health, child routine, work schedule, and sleep was moderately correlated with unplanned 30-day readmission.
Families of children with chronic disease endorsed several transition measures as family-centered. Many reported their child's health had not returned to baseline 7 and even 30 days after hospitalization.
Future trials of hospital-to-home transition interventions in this population should include PROs and health utilization outcomes.