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GuidelineNeurologia · 2026

The transition of patients with neuromuscular diseases: recommendations of the Spanish Society of Pediatric Neurology and the Spanish Society of Neurology. Endorsed by SENEP, SEN, and ASEM.

M Álvarez-Molinero, J Sotoca, L Carrera-García … A Camacho-Salas

NeurologyGuideline

Care transition for neuromuscular disease patients should begin at 12-14 years.

The transition of patients with neuromuscular diseases: recommendations of the Spanish Society of Pediatric Neurology and the Spanish Society of Neurology. Endorsed by SENEP, SEN, and ASEM.

M Álvarez-Molinero et al. · Neurologia · 2026

Background

The increased survival of adolescent patients with neuromuscular disease (NMD) entails the transition of these patients to adult healthcare.

Purpose

The process of care transition seeks to guarantee the continuity of healthcare, although it is not always well planned.

Methods

A review of the literature on the subject was performed by NMD experts from the Spanish Society of Paediatric Neurology and the Spanish Society of Neurology, and a final consensus statement was drafted.

12-14 years

Results

the age when patients with nerve and muscle conditions should start moving to adult care

More results

The process should be evaluated using specific scales and questionnaires for patients and healthcare professionals.

“

Conclusion

Care transition is a complex process requiring proper planning and coordination between professionals to improve health outcomes and avoid losses to follow-up. Its effective implementation requires institutional backing.

Post

The transition of patients with neuromuscular diseases: recommendations of the Spanish Society of Pediatric Neurology and the Spanish Society of Neurology. Endorsed by SENEP, SEN, and ASEM.

Care transition for neuromuscular disease patients should begin at 12-14 years.

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